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Search: Disability Porphyria (All words)Date: 3/5/00
Found: 73 document(s) on The WebSort: Score

1. Porphyria83%     New
Porphyria American Porphyria Foundation (APF) P.O. Box 22712 Houston, TX 77227 (713) 266-9617 (Voice) Web page: http://www.enterprise.net/apf/index.html Porphyria Research Unit The University of Queensland NRCET Department of Medicine Phone: 61 7...
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http://www.kumc.edu/gec/support/porphyri.html
2. The World Wide Web Virtual Library: Disability Resources for the Blind83%     New
Virtual Library: Internet Disability Resources NOTE: This page is a......page on the Brejcha Personal & Disability Resource Site. As a...
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http://www.netreach.net/~abrejcha/vl-webst.htm
3. porphyria82%     New
HELLENIC ASSOCIATION DERMATOLOGY - VENEREOLOGY PORPHYRIA 3D structure of Porphobilinogen deaminase HUMAN PORPHYRIA PAGE A Guide for People with Porphyria - Includes SAFE and UNSAFE drug list A Guide to Porphyria - A Complete Booklet Worth of Information
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http://www.edae.gr/porphyria.html
4. Web based Disability and Health and Impairment Information A to Z82%     New
Glasgow and West Central Scotland Disability Information, groups organisations and training resources
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http://cil.gcal.ac.uk/ConnectD/info/WWW/Liz.html
5. Porphyria (Page4)80%     New
Porphyria education, information, and links. A wide variety of treatment tips from a Registered Nurse and Public Health Nurse who is now disabled from the rare disease Porphyria.
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http://www.geocities.com/HotSprings/6680/porphyria4.html
6. Web based Disability and Health and Impairment Information A to Z76%     New
Glasgow and West Central Scotland Disability Information, groups organisations and training resources
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http://www.connections.gcal.ac.uk/Connections/info/WWW/Liz.html
7. Internet Disability Resource Site75%     New
This is part of the Brejcha Personal and Disability Resource Site, and after reading this page you can Click here for a Menu . But for now, Welcome to my:
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http://www.netreach.net/~abrejcha/websites.htm
8. Disability Links at Independent Living USA73%     New
A list of disabilities and medical conditions with links to on-line information
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http://www.ilusa.com/links/disabili.htm
9. Canadian Porphyria Foundation - Newsletter - Page 273%     New
The National Newsletter of the Canadian Porphyria Foundation SUMMER 1998 Increased awareness of Porphyria needed by health care providers By Juanita Aitken R.N. Porphyria is usually an inherited disorder, although occasionally the disease is acquired. The
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http://www.rural.escape.ca/porphyria/98sum_2.htm
10. Disability-Related Organizations, Associations and Foundations71%     New
Select the first letter of the word from the list above to jump to appropriate section of the list. If the name you are looking for starts with a digit or symbol, choose the '#'
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http://www.isdd.indiana.edu/~cedir/orglist.html
11. Favorite Links [ links.htm ]71%     New
Favorite Links Mastocytosis John Hopkins Health Information - - Mastocytosis Index The Mastocytosis Society NIAID Mastocytosis Fact Sheet Porphyria American Porphyria Foundation Dr. Ed Friedlander - - The Porphyrias Canadian Porphyria Foundation...
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http://www.geocities.com/HotSprings/Falls/5100/links.htm
12. Chemical Injury Information Network70%     New
P.O. Box 301 White Sulphur Springs, MT 59645 406.547.2255 Voice 406.547.2455 Fax Legal Information Packages, Environmental Access Profiles, General Resource Materials, MCS & the Government, General MCS ...
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http://ciin.org/library.htm
13. JHMI-InfoNet: Patient Advocacy Groups70%     New
Please help expand this list. Please send correction/additions for this list to: www@infonet.welch.jhu.edu 888-460-4673 Patient Advocates of Texas
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http://infonet.welch.jhu.edu/advocacy.html
14. Commissioners Decisions Index - Disability Benefits sections70%     New
Howell QC Disability living allowance - mobility - porphyria CDLA......Allowance (see also Disability Living Allowance) [Back to top of Subject...
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http://www.hywels.demon.co.uk/commrs/decnsdl.htm
15. Disability-Related Organizations, Associations and Foundations69%     New
Center for Disability Information and Referral. This list was created to provide the general user with names, addresses, phone numbers, web sites, and email addresses of di ...
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http://www.iidc.indiana.edu/~cedir/orglist.html
16. Directory of Digestive Diseases Organizations for Patients66%     New
Show me more like this53% FriendshipCenter.com
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http://www.niddk.nih.gov/health/digest/pubs/ddorgpat/ddorgpat.htm
17. http://www.geocities.com/66%     Old
Information and Resources for Children and Adults with health issues and disabilites. Porphyria Information. Misc, information on Crafts and Geneology. Childrens webpages.
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http://www.geocities.com/
18. Ability's_Consumer_Health_Page63%     New
Consumer Health Play The Never-Ending Story -- Or Select Another Title American Academy of Ophthalmology Eye Care FAQs Atherosclerosis: a Major Cause of Cardiovascular Disease a publication of the American Heart Association. Action on Smoking and Health. Advan
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http://www.ability.org.uk/chealth.html
19. Hereditary Biochemical Multiple Sclerosis63%     New
Information about a newly described hereditary biochemical subtype of MS, its treatment, and opportunity to participate in a genetic screening to positively identify it.
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http://apk.net/~rnr
20. Web based Disability and Health and Impairment Information A to Z63%     Old
Glasgow and West Central Scotland Disability Information, groups organisations and training resources
Found by: GoTo.com
http://cil.gcal.ac.uk/
21. PCT(porphyria cutanea tarda) Looking fo find a claimant VA59%     New
PCT(porphyria cutanea tarda) Looking fo find a claimant VA) [ Follow Ups ] [ Post Followup ] [ Agent Orange Debrief - WebBoard ] [ FAQ ] Posted by CWO Ed NICHOLLS USMC/USArmy Ret. on October 12, 1999 at 16:41:06: Would like to contact Vietnam Veteran
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http://www.goiv.com/ao/board/messages/189.html
22. Other Disabilities and Conditions58%     New
For links to a number of different disability topics, conditions and associations not listed here, check out http://mediconsult.org/noframes/associations . And also
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http://www.netreach.net/~abrejcha/vl-other.htm
23. FriendshipCenter.com57%     New
Show me more like this53% PICPAIN Sick and Tired Webring
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http://www.friendshipcenter.com/
24. Hereditary Biochemical Multiple Sclerosis Research57%     New
Information about a newly described hereditary biochemical subtype of MS, HBMS, its treatment, and opportunity to participate in a genetic screening to positively identify it.
Found by: EuroSeek
http://apk.net/~rnr/research.html
25. REFERRAL REQUEST FORM57%     New
MCS Referral & Resources offers a nationwide referral service to help people find support groups, physicians, attorneys and organizations with MCS-related information or expertise. To request a referral, ...
Found by: Infoseek
http://www.mcsrr.org/referralform.html
26. Scented products at hospitals have power to harm57%     New
Scented products at hospitals have power to harm By BOB LaMENDOLA Health Writer Web-posted: 10:35 p.m. Feb. 14, 1999 Hollie Hoffman rushed her mother to a Plantation hospital during an asthma attack in November, but she was the one who wound up choking for breath.
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http://www.sun-sentinel.com/news/daily/detail/0,1136,10000000000041434,00.html
27. Commissioners' Starred Decisions Index - 199656%     New
*81/96 Disability living allowance - mobility - porphyria CDLA......Reported Decisions Index ] *1/96 Disability living allowance - severe...
Found by: Google
http://www.hywels.demon.co.uk/commrs/star96.htm
28. Agent Orange Brief D753%     Old
Bottom of Page Department of Veterans Affairs Agent Orange Brief Prepared by the Environmental Agents Service January D7 VA Central Office, Washington, DC 1997 AGENT ORANGE AND PORPHYRIA CUTANEA TARDA What is porphyria cutanea tarda (PCT)? PCT is a.
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http://www.va.gov/
29. Hereditary Biochemical Multiple Sclerosis Research53%     New
Information about a newly described hereditary biochemical subtype of MS, HBMS, its treatment, and opportunity to participate in a genetic screening to positively identify it.
Found by: Excite, Magellan
http://junior.apk.net/~rnr/research.html
30. MGH Neurology - Neurology Web-Forum53%     New
Neurology WebForums at MGH This page accessed 9210919 times since 10/11/97. Welcome to the Neurology Web Forums at Massachusetts General Hospital. This is a continuing effort by the Department of Neurology at Massachusetts General Hospital to foster online discussions between patients, caregivers and physicians about various Neurology-related topics.
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http://neuro-www.mgh.harvard.edu/forum/
31. Inportant Porphyria Links51%     New
Click Here to Read our Forum Disclaimer and Statement of Purpose This Web Forum is not moderated in any sense. Anyone on the Internet can post articles or reply to previously posted articles, and they may do so anonymously. Therefore, the opinions and
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http://dem0nmac.mgh.harvard.edu/forum_2/PorphyriaF/3.28.9910.30PMInportantPo.html
32. KALEIDOSCOPE Alive: Organizations50%     New
A list all the health organizations that contribute to the content KALEIDOSCOPE ALive website. Each item links to detailed profiles organizations further links to their own websites.
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http://www.ktv-i.com/orgs/
33. PICPAIN Sick and Tired Webring50%     New
Show me more like this53% Multi-Chem Sensitivity / Allergy
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http://www.webring.org/cgi-bin/webring?ring=sickandtired;list
34. Rehabilitation Counseling - Disability Resources (Rasch\USF48%     New
Internet Disability Resourcesfor Rehabilitation Counselors Consumers This site is an electronic publication by John D. Rasch, Ph.D., CRC, professor and past-chair of Rehabilitation Counseling at the University of South Florida. The site is frequently
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http://pages.prodigy.net/artemis/resource.htm
35. Hereditary Biochemical Multiple Sclerosis46%     New
Information about a newly described hereditary biochemical subtype of MS, its treatment, and opportunity to participate in a genetic screening to positively identify it.
Found by: Excite, Magellan
http://junior.apk.net/~rnr/
36. Agent Orange Brief D745%     New
Bottom of Page Department of Veterans Affairs Agent Orange Brief Prepared by the Environmental Agents Service January D7 VA Central Office, Washington, DC 1997 AGENT ORANGE AND PORPHYRIA CUTANEA TARDA What is porphyria cutanea tarda (PCT)? PCT is a.
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http://www.va.gov/oaa/Docs/ResidentResources/aod7.html
37. Agent Orange Information Menu; U.S. Military Veterans Information (non-governmental); Colombo's Safety & Security44%     Old
You will find information on agent orange on this page
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http://web.raex.com/
38. Multi-Chem Sensitivity / Allergy44%     New
Show me more like this51% Self-Help Sourcebook OnLine
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http://www.mall-net.com/mcs
39. Agent Orange and VA Disability Compensation; Al Colombo's U.S. Veteran43%     New
(non-governmental) Agent Orange VA Disability Compensation What is......amount of these payments, called disability compensation, is based on the...
Found by: Google
http://web.raex.com/~colombo/vets2/agent-b3.htm
40. Hereditary Biochemical Multiple Sclerosis Research40%     New
Information about a newly described hereditary biochemical subtype of `MS, HBMS, its treatment, and opportunity to participate in a genetic screening to positively identify it.
Found by: Excite, Magellan
http://junior.apk.net/~rnr/tran2.html
41. Canadian Porphyria Foundation - Newsletter - Page 238%     New
Newsletter of the Canadian Porphyria Foundation SUMMER 1998 Increased......providers By Juanita Aitken R.N. Porphyria is usually an inherited...
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http://www.techplus.com/porphyria/98sum_2.htm
42. Huge Site Update -- All Porphyria Types38%     New
Huge Site Update -- All Porphyria Types This article submitted by Brent on 11/26/98. Email Address: porph@ciris.net http://www.ciris.net/~brenjohn Happy Thanksgiving! That's the first reason for this message.Now.. I've done a complete overhaul of...
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http://dem0nmac.mgh.harvard.edu/forum/PorphyriaF/11.26.983.59AMHugeSiteUpdate--
43. Yearly Cost For Porphyria38%     New
Click Here to Read our Forum Disclaimer and Statement of Purpose This Web Forum is not moderated in any sense. Anyone on the Internet can post articles or reply to previously posted articles, and they may do so anonymously. Therefore, the opinions and
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http://dem0nmac.mgh.harvard.edu/forum_2/PorphyriaF/10.2.994.56AMYearlyCostFo.html
44. KALEIDOSCOPE Interactive: Support Agencies37%     New
Click Here to Visit our Sponsor Looking for more information about a specific health topic? Need to get in touch with people who know what you are going through?
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http://www.ktv-i.com/helpagen/by_name.cfm
45. Sarcoidosis Newsletter37%     New
Sarcoidosis Newsletter [ Home ] [ About Us ] [ Sarcoidosis Online Sites ] [ Sarcoidosis Dr. Database ] [ Sarcoidosis Newsletter ] [ Sarcoid Message Forum ] [ Award Library ] [ Linking ] [ Copyright ] [ October 1999 ] [ July 1999 ] [ April 1999 ] [ Jan 1999 ] W
Found by: EuroSeek
http://www.blueflamingo.net/sarcoid/sarcoidnews/index.html
46. Self-Help Sourcebook OnLine37%     New
Show me more like this51% Conj. Estrogens/Medroxyprogesterone
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http://mentalhelp.net/selfhelp
47. Web rings for Rest Ministries, Inc. Chronic Illness/Pain Support37%     Old
A service ministry for people who live with chronic illness/or pain. Offers a monthly support newsletter, pen pals, and resources.
Found by: GoTo.com
http://www.restministries.org/
48. Agent Orange Information Menu; U.S. Military Veterans Information (non-governmental); Colombo's Safety & Security35%     New
You will find information on agent orange on this page
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http://web.raex.com/~colombo/vets2/ag_org.htm
49. Agent Orange and Porphyria Cutanea Tarda, Brief D7; U.S. Military Veterans Information (non-governmental); Colombo's Safety Security Homepage33%     New
U.S. Veteran Information(non-governmental) Agent Orange andPorphyria Cutanea Tarda What is porphyria cutanea tarda (PCT)? PCT is a disorder characterized by thinning and blistering of the skin in sun-exposed areas. Why are Vietnam veterans concerned about
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http://web.raex.com/~colombo/vets2/agent-d7.htm
50. Conj. Estrogens/Medroxyprogesterone31%     New
Show me more like this50% Neurology Web-Forum
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http://www.rxlist.com/cgi/generic/cemp.htm
51. E-mail to Bobbie31%     New
. ==WELCOME!== . You have come to the right place to be included in the genetic studies for Multiple Sclerosis led by Dr. M. Kotze.. If you have reason to believe that your diagnosed MS may actually be HBMS, (having a history of SOME of the ...
Found by: Snap
http://apk.net/~rnr/email.html
52. Magellan Health: Diseases & Conditions: Genetic31%     Old
Search Tips and Help Click Here! Magellan Home > Health > Diseases & Conditions > Genetic Subtopics Albinism Chromosomal Disorders Cystic Fibrosis Huntington's Disease More Conditions A-Z Muscular Dystrophy Support Networks Search Use this box to...
Found by: GoTo.com
http://magellan.mckinley.com/
53. The Pediatric Points of Interest - Your Library of Child Hea...31%     New
The Pediatric Points of Interest are a huge collection of pediatric (paediatric) links to child health, parenting, disease and illness, medical information for children, adolescents and babies related resources.The targeted audience are pediatric health care providers like pediatricians, family physicians, nurses, respiratory therapists, speech therapists, physical therapists and to parents...
Found by: WebCrawler
http://medweb.uni-muenster.de/mirror/poi/poi11.html
54. Other Disabilities and Conditions30%     New
This is part of the Brejcha Personal and Disability Resource Site, and after reading this page you can Click here for a Menu . But for now, Welcome to my:
Found by: Excite, Magellan
http://www.netreach.net/~abrejcha/otherdis.htm
55. Web based Disability and Health and Impairment Information A to Z30%     New
Glasgow and West Central Scotland Disability Information, groups organisations and training resources
Found by: Direct Hit
http://cil.gcal.ac.uk/Connections/info/WWW/Liz.html
56. Web rings for Rest Ministries, Inc. Chronic Illness/Pain Support30%     New
A service ministry for people who live with chronic illness/or pain. Offers a monthly support newsletter, pen pals, and resources.
Found by: HotBot, Infoseek, Snap, Yahoo!
http://www.restministries.org/webrings.htm
57. TRI Online! Disability Links - Miscellaneous Disabilities &a...27%     New
taconic, resources, independence, a center for independent living, services for people with disabilities, advocacy, benefits advisement, parent advocacy, information and referral, architectural barrier consultation, sign language interpreters, tri, equipment loan, independent living skills training, peer counseling, support groups, self-help, systems advocacy, poughkeepsie, dutchess county,...
Found by: WebCrawler
http://www.idsi.net/tri/dis3.htm
58. Yahoo! Regional>Countries>Canada>Health>Diseases and Conditions>Organizations27%     New
Personalize Help - Check Mail Home > Regional > Countries > Canada > Health > Diseases and Conditions > Organizations All sites Canadian sites only This category only Options Full Coverage: Health Care AIDS/HIV@ Cancer@ Cerebral Palsy@ Diabetes...
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http://ca.yahoo.com/Regional/Countries/Canada/Health/Diseases_and_Conditions/Organizations
59. Yahoo! Regional>Countries>Canada>Health>Diseases and Conditions>Organisations24%     Old
Help - More Yahoos Home > Regional > Countries > Canada > Health > Diseases and Conditions > Organisations All sites Singapore sites only Asia sites only This category only Options Full Coverage: Health Care Full Coverage AIDS/HIV@ Cancer@ Cerebral.
Found by: GoTo.com
http://sg.yahoo.com/
60. EHN's letter to ATSDR, re: MCS Report20%     New
EHN's Act Now! section, letter to ATSDR regarding the Interagency Workgroup's MCS Report
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http://users.lanminds.com/~wilworks/ehnhompg/atsdrlet.htm
61. BBC News | Health | Cow cure for royal madness18%     New
Cattle have given researchers a clue as to how they could develop a treatment for the incurable disease that made King George III suffer insanity.
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http://news.bbc.co.uk/hi/english/health/newsid_347000/347735.stm
62. Hollywood's Portrayal of Psychopathology18%     New
Show me more like this50% HealthlinkUSA
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http://home.epix.net/~tcannon1/psychopathmovies.htm
63. Internet Guide - Chapter 1118%     New
Web format Copyright David Hutchinson, 1997 Web Guides to Medical Sites MedWeb is probably the best available; see also the Medical List, Martindale s Health, and MedNexus. Austin Centre Gopher ...
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http://www.newwindpub.com/medguide/ch11a.htm
64. Missing title18%     New
Federal Benefits for Veterans and Dependents 1998 Edition Department of Veterans Affairs Office
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http://www.pueblo.gsa.gov/cic_text/fed_prog/va_benefits/98fedben.txt
65. vvgagent18%     New
Table of Contents: The purpose of this guide is to assist you, the veteran or survivor, in presenting your claim based on the veteranís exposure to herbicides in Vietnam in the best way possible to the U.S.
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http://www.vva.org/Benefits/vvgagent.htm
66. WebCrawler Health: Diseases & Conditions: Genetic18%     Old
Home : Health : Diseases & Conditions : Genetic -- Choose a Channel -- Arts & Books Autos Careers Computers & Internet Education Entertainment Games Health Home & Real Estate Kids & Family Money & Investing My Page News People & Chat Relationships..
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http://www.webcrawler.com/
67. US Code : Title 38, Section 111617%     New
degree of disability of 10 percent or more. (E) Porphyria cutanea......becoming manifest to a degree of disability of 10 percent or more. (B)...
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http://www4.law.cornell.edu/uscode/38/1116.html
68. Family Village Recognition and Awards14%     Old
Family Village Recognition and Awards A Wider World for Children with Disabilities Family Village listed as an "exemplary" disability site in this article by Roger Knight in the January, 1999 issue of Microsoft in K-12 Education, K-12 Connection...
Found by: GoTo.com
http://laran.waisman.wisc.edu/
69. Family Village Recognition and Awards14%     New
Family Village Recognition and Awards Family Village listed as an "exemplary" disability site in this article by Roger Knight in the January, 1999 issue of Microsoft in K-12 Education, K-12 Connection Newsletter, Classroom Corner.
Found by: Excite
http://laran.waisman.wisc.edu/fv/www/awards.htm
70. Commissioners' Starred Decisions Index - 199711%     New
* 1997 [Jump to *25/97 - *50/97 - *75/97 - , or top of *1995 - *C1995 - *1996 - *C1996 - *C 1997 - *1998 - *C1998 - *1999 - Starred Index - Subject Index - - Case Reference Index - Reported Decisions Index] *1/97 Income support - partner - Islamic marriage - C
Found by: EuroSeek
http://www.hywels.demon.co.uk/commrs/star97.htm
71. HealthlinkUSA11%     New
Show me more like this
Found by: AOL.COM search
http://www.healthlinkusa.com/
72. Magellan Health: Diseases & Conditions: Genetic11%     New
Search Tips and Help Click Here! Magellan Home > Health > Diseases & Conditions > Genetic Subtopics Albinism Chromosomal Disorders Cystic Fibrosis Huntington's Disease More Conditions A-Z Muscular Dystrophy Support Networks Search Use this box to...
Found by: HotBot
http://magellan.mckinley.com/health/diseases_and_conditions/genetic
73. NDDIC Publications List11%     New
The following materials are available from the clearinghouse. Please print the order form, indicate the items and quantities desired, and return the form with your mailing information to the clearinghouse.
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http://www.niddk.nih.gov/health/digest/pubs/ddpubs/index.htm